Blah, blah, blah. I haven't written in forever. Blah.
Well, today not only marks the first time I've blogged in about a month; it will also be my first day in the office since July 6. Insanity, I tell you! I worked July 9-11, but I worked from home due to the nature of the project. Then I was in Denver from July 12-15 for a wedding. At the end of the Denver trip, I got a cold and made the mistake of calling the doctor at the end of the workday on Monday, July 16, so he encouraged me to go to the ER.
Despite every ounce of me thinking it was an overreaction, I went, they admitted me, I did 17 days of IV antibiotics, and now I'm back in action. I won't get into the details of the course of antibiotics, but it was the hardest time I've ever had. (Well, it was probably tied with Blood Clot Fiasco 2007.) After much tiredness, Benadryl and vomiting, here I am!
Denver was AWESOME! I have always considered myself a beach girl, but them mountains was fun! I saw some of the most beautiful sights and absolutely loved the city. My cousin, Andrew, got married on Friday, July 13, and that was a ton of fun. We went to the Rockies-Phillies game on Saturday, July 14, and, despite the Phillies' win, it was a great experience. I wasn't sure if I was affected by the altitude until I went to Coors Field. WHEW! That was intense!
Like most people, I have been completely consumed by the Olympics these past few weeks. I know it would demand a lot of the athletes, but I wish it was always the Olympics. Not only is it pretty quality entertainment, but it also has an uncanny ability to make me feel unaccomplished and motivated at the same time. Granted, I would spend all of my time sitting in front of the TV, but I would at least feel like I should be doing more with my life. :)
BLOGGER, YOU ARE A FAILURE.
I performed Friday night for the first time since July 6, too! It was so much fun to be back on-stage surrounded by hilarious people. One of my coworkers (KP) came with a big group of people, so that was a blast! I'm excited that I'm getting back into the swing of things!
Well, I better get to moving so that I can pick up some much-needed coffee as I venture back into the real world. Wish me luck, kids!
Showing posts with label hospital. Show all posts
Showing posts with label hospital. Show all posts
Monday, August 6, 2012
Thursday, October 13, 2011
Day = Difference
This post is going to be therapeutic, so read at your own risk. I have a lot on my mind.
I have been thinking a lot about the difference a day can make. It actually makes me think about my friend Kathy who died last year. When she was diagnosed with cancer (on top of having CF), her Facebook profile had the line (or a very close iteration): "What a difference a day can make." Her life was transformed in a single day -- the day she found out she had leukemia. Her life changed in that very instant. Most change throughout life is gradual and can't be pinpointed to a specific moment. It's like, all of a sudden you wake up one day and realize that a transformation happened so slowly that you don't even recall how you got where you are. Then, there are other changes that happen so instantaneously that you can't possibly process the information as quickly as necessary.
A nurse I knew died last week from stomach cancer. She had no advanced warning, but went to the doctor complaining of stomach pain and found out that a) she had cancer, and b) it had spread to her entire body. She died three weeks later. I find it nearly impossible to grasp the concept that she was in a hospital more days than not, yet was unaware of the cancer.
Moments like these remind me exactly how precious each day is. It's so easy to get lost in the concept of the future -- living for it, preparing for it, dreaming of it. Sometimes we get so focused on the future that we lose sight of today. I realize I'm not making any never-been-heard revelations here, but this has been weighing heavily on my mind and heart over the past few weeks. No, we shouldn't get so caught up in today that we make reckless decisions that jeopardize the future. However, we also shouldn't harp so much on the future that we deprive ourselves of the things that bring us today's happiness.
Each day is meant to be cherished.
____
Disclaimer: Blog posts like this annoy me sometimes, but I wrote it for myself. So STEP OFF!
I have been thinking a lot about the difference a day can make. It actually makes me think about my friend Kathy who died last year. When she was diagnosed with cancer (on top of having CF), her Facebook profile had the line (or a very close iteration): "What a difference a day can make." Her life was transformed in a single day -- the day she found out she had leukemia. Her life changed in that very instant. Most change throughout life is gradual and can't be pinpointed to a specific moment. It's like, all of a sudden you wake up one day and realize that a transformation happened so slowly that you don't even recall how you got where you are. Then, there are other changes that happen so instantaneously that you can't possibly process the information as quickly as necessary.
A nurse I knew died last week from stomach cancer. She had no advanced warning, but went to the doctor complaining of stomach pain and found out that a) she had cancer, and b) it had spread to her entire body. She died three weeks later. I find it nearly impossible to grasp the concept that she was in a hospital more days than not, yet was unaware of the cancer.
Moments like these remind me exactly how precious each day is. It's so easy to get lost in the concept of the future -- living for it, preparing for it, dreaming of it. Sometimes we get so focused on the future that we lose sight of today. I realize I'm not making any never-been-heard revelations here, but this has been weighing heavily on my mind and heart over the past few weeks. No, we shouldn't get so caught up in today that we make reckless decisions that jeopardize the future. However, we also shouldn't harp so much on the future that we deprive ourselves of the things that bring us today's happiness.
Each day is meant to be cherished.
____
Disclaimer: Blog posts like this annoy me sometimes, but I wrote it for myself. So STEP OFF!
Tuesday, February 15, 2011
Testing, testing
Well, this is my first attempt at blogging on my phone. Okay, that was a fabrication. I downloaded the Blogger app a few minutes ago, so this is my first time blogging with the app. I did write a tiny blog once logged into the Blogger website. Why am I telling you stuff you don't care about at all? Good question.
I just got home from a friend's (LG) birthday party. I wasn't feeling great today, so I almost didn't go. Then I started wondering if I was giving into the "illness" too easily, so I went regardless of whether or not it was a good idea. Only time will tell.
I'm currently in bed thinking about how I need to be over at the hospital at 8:00 a.m. to fulfill my role as a Patient Family Advisor. Whew. I realize once a month is a very small time commitment, but when it's that early on a day when I'd normally be telecommuting, it's gigantic.
I had steak nachos at Willy's today, so that was what I'd call success. Other than that, the day was kind of rough. At least I wore a new cardigan.
Now that I've wasted your time, I'll go to sleep so tomorrow might yield more worthwhile things.
Wednesday, November 10, 2010
What I need to doooo....
Hi! I'm doing my vest!
Well, this week has been great so far! On Monday I ran 3+ miles without ever even stepping foot on the rails of the treadmill. Monday evening I met a complete stranger (MJ) who just moved to Atlanta, and that was a lot of fun.
Then, yesterday evening I met MV for coffee at Starbucks. Before we met, I spent probably an hour typing things from handwritten notebooks, so that made me feel pretty accomplished. After we met, I saw The Social Network with ES. If you haven't seen it yet, I highly recommend it. I never even started to doze off, which is a gigantic accomplishment for a movie-watching failure like myself.
I'm headed to a doctor's appointment this afternoon. It's for a new study I started when I was in the hospital. Yeah, you'd think I'd be on a study hiatus given my recent experience, but oh well. I can't imagine getting hurt by drinking protein... Knock on wood!
My book is coming along! I am really excited to work on it this afternoon. :-)
I am grateful for good people, cheese, and headache medicine.
Well, this week has been great so far! On Monday I ran 3+ miles without ever even stepping foot on the rails of the treadmill. Monday evening I met a complete stranger (MJ) who just moved to Atlanta, and that was a lot of fun.
Then, yesterday evening I met MV for coffee at Starbucks. Before we met, I spent probably an hour typing things from handwritten notebooks, so that made me feel pretty accomplished. After we met, I saw The Social Network with ES. If you haven't seen it yet, I highly recommend it. I never even started to doze off, which is a gigantic accomplishment for a movie-watching failure like myself.
I'm headed to a doctor's appointment this afternoon. It's for a new study I started when I was in the hospital. Yeah, you'd think I'd be on a study hiatus given my recent experience, but oh well. I can't imagine getting hurt by drinking protein... Knock on wood!
My book is coming along! I am really excited to work on it this afternoon. :-)
I am grateful for good people, cheese, and headache medicine.
Sunday, October 17, 2010
Vrooooom. Vroooooom.
First and foremost, sorry for the delay. I don't actually think that people care that much, but I do realize that this is how most people have been keeping up with the hospitalization/surgery, so I figured I ought to break the silence.
Well, I got out of the hospital on Friday at around noon. I was having mixed feelings about it, as I usually do when I'm leaving the hospital. I don't exactly know what causes me to feel like I'm on an emotional roller coaster when I'm hospitalized. In a way, the hospital setting is relieving because you get a free pass to feel however you want to feel. At the same time, though, I've noticed that the hospital breeds pity parties, which isn't something that interests me. Anyway, I said all of that to say that the last few days have carried with them many ups and downs - fluctuations that seemed acceptable in the hospital, but are a little harder to carry back into real life.
When we left the hospital, my mom and I went to a few different pharmacies trying to get a handle on the prescriptions that I needed. By the time we got home, I was wiped out and took a nap while my amazing mom went to the grocery store to get me some things. My IV medications got delivered Friday evening and the nurse came by to make sure I had everything under control. I wasn't quite feeling up to being alone, so my mom spent the night with me. We slept on the couches and I was very thankful to have her company.
I sat around a lot on Saturday. We got up and my mom headed back to her house. I took my plethora of medications. Then I sat outside writing for a little bit. I was in a very 'deep' mood, and that has continued into today. Then I took another nap (I'm good at that lately) and my mom came back and took me to my parents' house. It was good to spend one more night with company. My mom and I made a quick stop by my grandmother's house on the way here this afternoon.
I had some visitors today. Two friends from the theatre stopped by (LG and EG), and it was good to talk creative with them. We talked about creative endeavors, but we also talked about life, so I was in hog heaven. PLUS, they brought me some queso from Willy's. AWESOME! Anyway, I really enjoyed their company; it got my creative juices flowing. Another friend (JM) also stopped by for a bit, and I continued my philosophical discussions with her. It's days like today when I remember how fortunate I am to know such caring people.
Tomorrow will be my first would-be-workday at home. I think my brother plans to come by WITH HIS DOG!, so that will be fun. I'm hoping this post-hospital funk has almost passed.
Well, I got out of the hospital on Friday at around noon. I was having mixed feelings about it, as I usually do when I'm leaving the hospital. I don't exactly know what causes me to feel like I'm on an emotional roller coaster when I'm hospitalized. In a way, the hospital setting is relieving because you get a free pass to feel however you want to feel. At the same time, though, I've noticed that the hospital breeds pity parties, which isn't something that interests me. Anyway, I said all of that to say that the last few days have carried with them many ups and downs - fluctuations that seemed acceptable in the hospital, but are a little harder to carry back into real life.
When we left the hospital, my mom and I went to a few different pharmacies trying to get a handle on the prescriptions that I needed. By the time we got home, I was wiped out and took a nap while my amazing mom went to the grocery store to get me some things. My IV medications got delivered Friday evening and the nurse came by to make sure I had everything under control. I wasn't quite feeling up to being alone, so my mom spent the night with me. We slept on the couches and I was very thankful to have her company.
I sat around a lot on Saturday. We got up and my mom headed back to her house. I took my plethora of medications. Then I sat outside writing for a little bit. I was in a very 'deep' mood, and that has continued into today. Then I took another nap (I'm good at that lately) and my mom came back and took me to my parents' house. It was good to spend one more night with company. My mom and I made a quick stop by my grandmother's house on the way here this afternoon.
I had some visitors today. Two friends from the theatre stopped by (LG and EG), and it was good to talk creative with them. We talked about creative endeavors, but we also talked about life, so I was in hog heaven. PLUS, they brought me some queso from Willy's. AWESOME! Anyway, I really enjoyed their company; it got my creative juices flowing. Another friend (JM) also stopped by for a bit, and I continued my philosophical discussions with her. It's days like today when I remember how fortunate I am to know such caring people.
Tomorrow will be my first would-be-workday at home. I think my brother plans to come by WITH HIS DOG!, so that will be fun. I'm hoping this post-hospital funk has almost passed.
Monday, October 11, 2010
In the year of 1492
Hello from Admissions at the hospital! I can't wait until the day that I get to the hospital and they're actually ready for me. That would be a lot of fun. Honestly, I've gotten into rooms more quickly when I've come in on a whim versus when planned several days in advance. What's up with that?
HAPPY COLUMBUS DAY!
I'll write more later. I'm distracted.
HAPPY COLUMBUS DAY!
I'll write more later. I'm distracted.
Saturday, October 9, 2010
Wiffle ball
Hello!
Well, today started out a bit differently than usual. I did sleep in until about 10:00 a.m. Anyway, shortly after I woke up, my friend (PM) from a previous workplace texted me to ask if I could play on his wiffle ball team. They were short some girls and he knew that I lived nearby the field -- and he and I were on the same kickball team once, so he knows I like sports. It sounded intriguing, so I threw on some clothes and made it to the field shortly after the game started.
My first at-bat was a total embarrassment, but I felt pretty solid after that. The first time I hit the ball and started to run, I immediately felt pain in my left hip flexor ... primarily because I didn't stretch, didn't warm-up, and haven't sprinted in quite some time. Then, the second time, I got on base and had major pain in my right hip flexor -- like thought-I-was-gonna-have-to-leave-the-game bad. I ended up scoring that inning and, thankfully, it was the end of the game. I have been in pain ever since, but only on the right side. It mainly hurts when I walk and when I lift my leg for any reason, such as going up the stairs, repositioning myself on the bed/couch. I honestly think that a wiffle ball injury is more humiliating than my infamous cornhole injury. We'll see how it feels in the morning. Oh, it also hurts when I laugh or cough. LAUGH 'TIL YOU COUGH! Needless to say, the wiffle ball incident impeded my exercise goal, but at least I did something active.
The rest of the day has been pretty relaxing. I came home, worked on some mass emails, then watched some college football with my roommate. My friend (JM) and I went out to eat at MiMi's Cafe, and I got meatballs and ravioli. It was good!
Tomorrow is a big day for me! Not only is it my last day before the hospitalization, but I am going to my parents' house for a cookout and then the BRAVES GAME! I am really, really looking forward to it all, which is why I'm getting an early night's sleep.
I've got my Braves pajama shirt on. GO TEAM!
Well, today started out a bit differently than usual. I did sleep in until about 10:00 a.m. Anyway, shortly after I woke up, my friend (PM) from a previous workplace texted me to ask if I could play on his wiffle ball team. They were short some girls and he knew that I lived nearby the field -- and he and I were on the same kickball team once, so he knows I like sports. It sounded intriguing, so I threw on some clothes and made it to the field shortly after the game started.
My first at-bat was a total embarrassment, but I felt pretty solid after that. The first time I hit the ball and started to run, I immediately felt pain in my left hip flexor ... primarily because I didn't stretch, didn't warm-up, and haven't sprinted in quite some time. Then, the second time, I got on base and had major pain in my right hip flexor -- like thought-I-was-gonna-have-to-leave-the-game bad. I ended up scoring that inning and, thankfully, it was the end of the game. I have been in pain ever since, but only on the right side. It mainly hurts when I walk and when I lift my leg for any reason, such as going up the stairs, repositioning myself on the bed/couch. I honestly think that a wiffle ball injury is more humiliating than my infamous cornhole injury. We'll see how it feels in the morning. Oh, it also hurts when I laugh or cough. LAUGH 'TIL YOU COUGH! Needless to say, the wiffle ball incident impeded my exercise goal, but at least I did something active.
The rest of the day has been pretty relaxing. I came home, worked on some mass emails, then watched some college football with my roommate. My friend (JM) and I went out to eat at MiMi's Cafe, and I got meatballs and ravioli. It was good!
Tomorrow is a big day for me! Not only is it my last day before the hospitalization, but I am going to my parents' house for a cookout and then the BRAVES GAME! I am really, really looking forward to it all, which is why I'm getting an early night's sleep.
I've got my Braves pajama shirt on. GO TEAM!
Wednesday, October 6, 2010
How things change again...
I am in totaaaaaaaally different spirits than I was on Monday, so get excited, y'all!
First, to give you an update, the rodent has been eRATicated. Last night when I got home from work I noticed a fly. Now, I remember doing a double-take, thinking that I'd never seen a fly in my house in two years. The fly was dying on the floor, so I went to the library and to Publix. Well, that's not why I went those places, but anyway... After my errands, I walked back in and saw a few more flies buzz by. At this point, with my malfunctioning nose, I decided (in my mind) that I smelled something. My roommate was not here to borrow her sense of smell, so I called my uncle. He came over, looked under the dishwasher (where I'd convinced myself the smell was), and said, "Your suspicions are confirmed." He then extracted the carcass. THIS IS A RAT-FREE ENVIRONMENT. Ugh, the weight of the dead rat in a grocery bag made me nauseous.
Speaking of nauseous, the Phillies pitched a no-hitter tonight. I'm hopeful that they've now blown their wad too early and will completely flop. Rather than smack-talking, I should probably just say that I'm way excited to watch the Braves tomorrow. My boss has even given me permission to wear Braves attire to work, so it's gonna be a great day! GO TEAM!
I've totally digested and accepted the hospital news, so that's just chump change to me at this point. Do y'all know what chump change is? I've always used that saying, especially with my family. I Googled it and there were results, so I guess I'm not crazy.
I know I sound totally soapboxish, but it's amazing what can happen when you spend your time on positive things. I had a related email conversation with a friend (SW) today, and it really is incredible the difference it can make. :-)
First, to give you an update, the rodent has been eRATicated. Last night when I got home from work I noticed a fly. Now, I remember doing a double-take, thinking that I'd never seen a fly in my house in two years. The fly was dying on the floor, so I went to the library and to Publix. Well, that's not why I went those places, but anyway... After my errands, I walked back in and saw a few more flies buzz by. At this point, with my malfunctioning nose, I decided (in my mind) that I smelled something. My roommate was not here to borrow her sense of smell, so I called my uncle. He came over, looked under the dishwasher (where I'd convinced myself the smell was), and said, "Your suspicions are confirmed." He then extracted the carcass. THIS IS A RAT-FREE ENVIRONMENT. Ugh, the weight of the dead rat in a grocery bag made me nauseous.
Speaking of nauseous, the Phillies pitched a no-hitter tonight. I'm hopeful that they've now blown their wad too early and will completely flop. Rather than smack-talking, I should probably just say that I'm way excited to watch the Braves tomorrow. My boss has even given me permission to wear Braves attire to work, so it's gonna be a great day! GO TEAM!
I've totally digested and accepted the hospital news, so that's just chump change to me at this point. Do y'all know what chump change is? I've always used that saying, especially with my family. I Googled it and there were results, so I guess I'm not crazy.
I know I sound totally soapboxish, but it's amazing what can happen when you spend your time on positive things. I had a related email conversation with a friend (SW) today, and it really is incredible the difference it can make. :-)
Monday, October 4, 2010
How things change...
Well, today went much differently than expected. That sentence sounds weird, but I'm out of it. Anyway, I went into work super early (7ish) because I wanted to get home early so that I could see a friend who is (was) leaving the state tomorrow. When I got to work I was very focused, knowing that I have a lot to accomplish this week before I take off for surgery. I emailed the staff about my upcoming leave and started cranking things out.
Out of nowhere I started getting a call from an unknown number. I could tell it was an Emory number, so I answered, thinking it probably had to do with surgery talk or something. To my surprise, it was one of the CF doctors. I still assumed she was calling to verify that all systems were go, but she was instead informing me that some tests from my doctor's appointment (on September 2) showed that I had developed a bacteria in my lungs. As you can imagine, I was very shocked - not only because that appointment was so long ago, but also because this information was nowhere to be found last week.
After an emotionally exhausting day, the new plan consists of me getting admitted to the hospital next Monday to start IVs, with surgery being postponed until next Thursday. As tough as today has been, I am feeling at peace with what is going to happen. Needless to say, I was too much of an emotional wreck to tack on the goodbye, so that has been postponed until tomorrow.
In positive news, THE BRAVES ARE IN THE PLAYOFFS. I am going to the game on Sunday! The doctor tried to get me to come into the hospital on Friday, but I negotiated my way out of it. When I was emailing the surgeon's assistant to explain my unrelenting need to get the date changed, I was like, "To be completely honest, I am a die-hard Braves fan." She was very sweet and encouraging - one of the highlights of my day. My friend (ES) gave me some Braves SillyBandz today! I have on a tomahawk right now.
I am running on low emotional fuel right now, so I'm going to go to sleep. Although I never would have imagined it earlier in the day, I'm starting to see the positive...
Thank you for any thoughts of healing and happiness that you can send my way.
P.S. No word from the rat.
Out of nowhere I started getting a call from an unknown number. I could tell it was an Emory number, so I answered, thinking it probably had to do with surgery talk or something. To my surprise, it was one of the CF doctors. I still assumed she was calling to verify that all systems were go, but she was instead informing me that some tests from my doctor's appointment (on September 2) showed that I had developed a bacteria in my lungs. As you can imagine, I was very shocked - not only because that appointment was so long ago, but also because this information was nowhere to be found last week.
After an emotionally exhausting day, the new plan consists of me getting admitted to the hospital next Monday to start IVs, with surgery being postponed until next Thursday. As tough as today has been, I am feeling at peace with what is going to happen. Needless to say, I was too much of an emotional wreck to tack on the goodbye, so that has been postponed until tomorrow.
In positive news, THE BRAVES ARE IN THE PLAYOFFS. I am going to the game on Sunday! The doctor tried to get me to come into the hospital on Friday, but I negotiated my way out of it. When I was emailing the surgeon's assistant to explain my unrelenting need to get the date changed, I was like, "To be completely honest, I am a die-hard Braves fan." She was very sweet and encouraging - one of the highlights of my day. My friend (ES) gave me some Braves SillyBandz today! I have on a tomahawk right now.
I am running on low emotional fuel right now, so I'm going to go to sleep. Although I never would have imagined it earlier in the day, I'm starting to see the positive...
Thank you for any thoughts of healing and happiness that you can send my way.
P.S. No word from the rat.
Saturday, September 18, 2010
ROAAAAAAAAAAAAAR
I'm at one of those points again where the world just feels like it's spinning out of control. I literally feel like I blogged yesterday, but apparently it's been four days. In some respects that makes me glad because I know I'm out and about accomplishing things. In other ways, though, it's discouraging because I know I'm not stopping to smell the roses, which is kinda stressing me out.
Well, I will vomit if I talk about the Braves game on Wednesday. My record has dropped to 6 and 4. BLAH BLAH BLAH. The Braves and I are not on great terms right now, but I was happy for a win tonight.
My surgery is officially on the books for October 11. I'm not sure yet what the plan is as far as getting admitted, going on IV antibiotics, taking off from work, etc. Honestly I'm still processing the fact that it's scheduled, so I'll give it a few days to start finalizing those details. I feel a sense of relief, but I'm also overwhelmed.
I was in the show last night and it was fun! It was one of the new apprentices' (AF) first shows, so that was cool. He and I were in every scene together, too! I played Remote Control Styles, Musical Styles (80s love ballad, 90s boy band, R&B, rap), Repeat Scene Stereotypes (drag queens, drunk drug dealers, rednecks), and Oscar Musical Funeral (as Barbara Buchanan). Yeeehaw!
Today I met my siblings (and my brother's girlfriend) for lunch at Chick-fil-A. Then, for dinner, I went to Los Bravos with KW. I needed to get out and do something because today was kinda 'mleh.' I had a great time. We watched a documentary called Dear Zachary and it was really interesting. Although today had its ups and downs, I'm thankful to be ending on an 'up.'
Sleeping sounds so awesome right now! I am really excited to sleep and feel new in the morning!
Well, I will vomit if I talk about the Braves game on Wednesday. My record has dropped to 6 and 4. BLAH BLAH BLAH. The Braves and I are not on great terms right now, but I was happy for a win tonight.
My surgery is officially on the books for October 11. I'm not sure yet what the plan is as far as getting admitted, going on IV antibiotics, taking off from work, etc. Honestly I'm still processing the fact that it's scheduled, so I'll give it a few days to start finalizing those details. I feel a sense of relief, but I'm also overwhelmed.
I was in the show last night and it was fun! It was one of the new apprentices' (AF) first shows, so that was cool. He and I were in every scene together, too! I played Remote Control Styles, Musical Styles (80s love ballad, 90s boy band, R&B, rap), Repeat Scene Stereotypes (drag queens, drunk drug dealers, rednecks), and Oscar Musical Funeral (as Barbara Buchanan). Yeeehaw!
Today I met my siblings (and my brother's girlfriend) for lunch at Chick-fil-A. Then, for dinner, I went to Los Bravos with KW. I needed to get out and do something because today was kinda 'mleh.' I had a great time. We watched a documentary called Dear Zachary and it was really interesting. Although today had its ups and downs, I'm thankful to be ending on an 'up.'
Sleeping sounds so awesome right now! I am really excited to sleep and feel new in the morning!
Saturday, September 4, 2010
Laaaaaaaaaaaabor Day
I am getting so bad at blogging. I cut myself some slack, though, because it feels like I haven't been home much at all this week.
Well, Thursday was an eventful day. Because of all of the kidney issues, the doctor mentioned wanting to hospitalize me to give me fluids to help flush out my kidneys. They went ahead and moved next Tuesday's CF appointment up to Thursday so that they could put me in the hospital with as much information as possible. So, I went to get bloodwork so they'd have the results by the time of my appointment. Now, for the dramatic turn in all of this - my kidney bloodwork was almost back to normal and my PFTs were up another three percent. Nobody understands at this point, but the hospital talk was merely a scare and now it's only a matter of scheduling sinus surgery. This has been such an emotional roller coaster!!!!!!!!!!
Thursday night I spoke at a CF fundraising cultivation event. It was fun! Since I was running around all day, I really had zero preparation time, but I still think it went well. Yeehaw!
Yesterday (Friday) was a good day. My roommate was working from home, too, so it was a lot of fun. I wish she got to work from home with me every Friday. :-) When I got off work early, I went to meet Claire at the pool. We hung out and chatted for a few hours. On my way to work at the theatre, I treated myself to Yogli Mogli and ate many things shunned by my low-oxalate diet.
I worked the lights without any supervision last night, so that was fun. Light-wise, all went extremely well. However, the lights person is also in charge of recording the DVD, and I got the dreaded "Disc cannot be finalized" message. Thankfully everyone was really laid back, but it made me so mad. That was the easiest part of the last three shows. People were like, "Oh lord. I know that message." So, OOPS, although I heard I couldn't have done anything to fix it.
Right now I'm sitting at my parents' kitchen table. I'm about to go get my hair did(!).
Happy birthday to my brother (yesterday), and happy Labor Day to all!
Well, Thursday was an eventful day. Because of all of the kidney issues, the doctor mentioned wanting to hospitalize me to give me fluids to help flush out my kidneys. They went ahead and moved next Tuesday's CF appointment up to Thursday so that they could put me in the hospital with as much information as possible. So, I went to get bloodwork so they'd have the results by the time of my appointment. Now, for the dramatic turn in all of this - my kidney bloodwork was almost back to normal and my PFTs were up another three percent. Nobody understands at this point, but the hospital talk was merely a scare and now it's only a matter of scheduling sinus surgery. This has been such an emotional roller coaster!!!!!!!!!!
Thursday night I spoke at a CF fundraising cultivation event. It was fun! Since I was running around all day, I really had zero preparation time, but I still think it went well. Yeehaw!
Yesterday (Friday) was a good day. My roommate was working from home, too, so it was a lot of fun. I wish she got to work from home with me every Friday. :-) When I got off work early, I went to meet Claire at the pool. We hung out and chatted for a few hours. On my way to work at the theatre, I treated myself to Yogli Mogli and ate many things shunned by my low-oxalate diet.
I worked the lights without any supervision last night, so that was fun. Light-wise, all went extremely well. However, the lights person is also in charge of recording the DVD, and I got the dreaded "Disc cannot be finalized" message. Thankfully everyone was really laid back, but it made me so mad. That was the easiest part of the last three shows. People were like, "Oh lord. I know that message." So, OOPS, although I heard I couldn't have done anything to fix it.
Right now I'm sitting at my parents' kitchen table. I'm about to go get my hair did(!).
Happy birthday to my brother (yesterday), and happy Labor Day to all!
Friday, August 13, 2010
Riddle me this
Even though I don't feel like I have a lot to show for it, today was a very worthwhile day.
Yesterday I ended up finagling my way onto the doctor's calendar for today - both the CF doctor (not my usual one, but a good one!) and the endocrinologist. So, I ended up waking around the same time as usual to head to the doctor.
My study coordinator was there to try to get blood from me and we gave up after three sticks. Trying again Monday...
The endocrinologist had all the reports from my blood and urine fiascoes, so that was a relief. It sounds like many things checked out well, but it looks like the tests showed that I need to go on a low-oxalate diet. Basically my risk of forming kidney stones is extremely high because of the overabundance of oxalate in my body. Now, I don't really even know what oxalate it, but I did learn a few things. I remember the doctor specifically mentioning not consuming wine and chocolate. I was pleased to hear that a lot of vegetables were blacklisted, so that's a perk. All I know is that I need to touch base with the nutritionist next week to talk about this new diet. As for the funny part, I also need to go on a low-calcium diet, but I'm bordering on osteoporosis. RIDDLE ME THAT!
Now, the CF doctor went surprisingly well. My PFTs had risen from my study appointment, and had only dropped slightly from my pre-vacation appointment. I actually couldn't believe it. They think it can probably be attributed to my new inhaled antibiotic. The doctor mentioned throwing me in the hospital since I feel bad, but said that she thought we should try 21 days of oral antibiotics. Obviously they want me to feel well, but it's also hard to warrant putting me in the hospital when my numbers are pretty good. I guess that's a good problem to have...
I met my old boss for lunch at El Azteca after the visits. We had a really great conversation, per usual, and it had my mind spinning for the remainder of the day. I was thinking a lot about vulnerability and taking chances. Sometimes it's hard to live vulnerably in a world where being 'tough' is the socially acceptable way to be. The more I do improv, the more I become comfortable with being vulnerable in many aspects of my life. I really cherish life and I value the relationships in my life, but sometimes I think I ought to do a better job of demonstrating that. I want to know that, no matter what happens in my life, I stayed true to myself and I wasn't afraid of being open and honest.
Tomorrow I'm performing in the 8:00 p.m. show. It hasn't quite hit me yet. The closer it gets, though, the more excited I am.
The Braves won. YEAH!
Yesterday I ended up finagling my way onto the doctor's calendar for today - both the CF doctor (not my usual one, but a good one!) and the endocrinologist. So, I ended up waking around the same time as usual to head to the doctor.
My study coordinator was there to try to get blood from me and we gave up after three sticks. Trying again Monday...
The endocrinologist had all the reports from my blood and urine fiascoes, so that was a relief. It sounds like many things checked out well, but it looks like the tests showed that I need to go on a low-oxalate diet. Basically my risk of forming kidney stones is extremely high because of the overabundance of oxalate in my body. Now, I don't really even know what oxalate it, but I did learn a few things. I remember the doctor specifically mentioning not consuming wine and chocolate. I was pleased to hear that a lot of vegetables were blacklisted, so that's a perk. All I know is that I need to touch base with the nutritionist next week to talk about this new diet. As for the funny part, I also need to go on a low-calcium diet, but I'm bordering on osteoporosis. RIDDLE ME THAT!
Now, the CF doctor went surprisingly well. My PFTs had risen from my study appointment, and had only dropped slightly from my pre-vacation appointment. I actually couldn't believe it. They think it can probably be attributed to my new inhaled antibiotic. The doctor mentioned throwing me in the hospital since I feel bad, but said that she thought we should try 21 days of oral antibiotics. Obviously they want me to feel well, but it's also hard to warrant putting me in the hospital when my numbers are pretty good. I guess that's a good problem to have...
I met my old boss for lunch at El Azteca after the visits. We had a really great conversation, per usual, and it had my mind spinning for the remainder of the day. I was thinking a lot about vulnerability and taking chances. Sometimes it's hard to live vulnerably in a world where being 'tough' is the socially acceptable way to be. The more I do improv, the more I become comfortable with being vulnerable in many aspects of my life. I really cherish life and I value the relationships in my life, but sometimes I think I ought to do a better job of demonstrating that. I want to know that, no matter what happens in my life, I stayed true to myself and I wasn't afraid of being open and honest.
Tomorrow I'm performing in the 8:00 p.m. show. It hasn't quite hit me yet. The closer it gets, though, the more excited I am.
The Braves won. YEAH!
Tuesday, August 10, 2010
Until you're back here, baby...
Mlaaaah, mlaaaaaaaaah. Before I forget, I want to say that I was super thankful last Thursday. I went to Willy's (me??? Willy's???) and the owner was like, "You come here all the time." I was like, "What up." Then he gave me half-off. What a wonderful man he is.
The Braves just pulled out a mega-win in the 9th inning. It was a miracle after last night's debacle. Thankfully, though, I didn't have the TV on to witness what happened last night. I had a difficult time getting to sleep last night. I think it's this whole not-feeling-well thing.
Today was an odd day. I had a ton of meetings on my calendar, but I didn't end up making it to two of them. The first one included biscuits from Chick-fil-A! The second one was with my team at work. The meeting went well, but then I got into a conversation about possibly going into the hospital and the day steadily went downhill beginning at that moment. I ended up heading home because I didn't feel well mentally or physically, so I've been home since about 4:00 p.m.
I have nothing to say. I am going to read a bit before I head to bed. I was supposed to go to a meeting at the hospital tomorrow followed by some bloodwork (me??? bloodwork???), but I'm gonna stay home.
<3
The Braves just pulled out a mega-win in the 9th inning. It was a miracle after last night's debacle. Thankfully, though, I didn't have the TV on to witness what happened last night. I had a difficult time getting to sleep last night. I think it's this whole not-feeling-well thing.
Today was an odd day. I had a ton of meetings on my calendar, but I didn't end up making it to two of them. The first one included biscuits from Chick-fil-A! The second one was with my team at work. The meeting went well, but then I got into a conversation about possibly going into the hospital and the day steadily went downhill beginning at that moment. I ended up heading home because I didn't feel well mentally or physically, so I've been home since about 4:00 p.m.
I have nothing to say. I am going to read a bit before I head to bed. I was supposed to go to a meeting at the hospital tomorrow followed by some bloodwork (me??? bloodwork???), but I'm gonna stay home.
<3
Saturday, July 17, 2010
It's like thunda...lightnin'
Well, the weather doesn't exactly look glorious for Shoot the Hooch 2010, but WE WILL PREVAIL! According to the hourly forecast, it's supposed to rain pretty much all day. We'll see where the day takes us, but I'm positive we'll have fun!
So, let's talk about the doctor. Booooooo. Yesterday's appointment with the endocrinologist went pretty well. I have to get about 8 million blood tests done for different things, so I guess I'll be knocking those puppies out on Monday. My bone density has been dropping and they want to check out all kinds of stuff. They also want me to collect my urine over a 24-hour period to see if my parathyroid is jacking up my calcium levels. There is a nice little rhyme that indicates something is wrong with the parathyroid, "moans, groans, stones, and bones." The most ironic thing is that the kidney stone debacle hadn't even happened when I was forced to make this appointment. WE SHALL SEE!
Then, onto the study appointment. Well, we successfully got blood on the first stick today! *round of applause* Basically I sat in a chair and we had a space heater in the chair in front of me blowing right at me. It worked like a charm! Then, onto the dreaded PFTs. I didn't realize the PFTs were dreaded until I saw the results. I last went to the doctor on June 1 - before the travels and the Series of Unfortunate Events. My numbers have dropped pretty significantly in that short time. These are hospitalization-worthy, hands-down, but we'll see if the information is relayed along to my doctor. I don't feel bad enough to warrant going into the hospital, but I do know these are pretty much the worst numbers I've ever seen. Laaaaaaaaame.
Yesterday I had lunch with my friend (ED), her mom, and her brother. It was fun to catch up and eat MEXICAN FOOD! We got kicked out of the restaurant because we're cool like that. And they were also closing for the afternoon.
I operated the camera at the theatre last night. The show was sold out and a lot o' fun.
Off to tackle the Chattahoochee!
So, let's talk about the doctor. Booooooo. Yesterday's appointment with the endocrinologist went pretty well. I have to get about 8 million blood tests done for different things, so I guess I'll be knocking those puppies out on Monday. My bone density has been dropping and they want to check out all kinds of stuff. They also want me to collect my urine over a 24-hour period to see if my parathyroid is jacking up my calcium levels. There is a nice little rhyme that indicates something is wrong with the parathyroid, "moans, groans, stones, and bones." The most ironic thing is that the kidney stone debacle hadn't even happened when I was forced to make this appointment. WE SHALL SEE!
Then, onto the study appointment. Well, we successfully got blood on the first stick today! *round of applause* Basically I sat in a chair and we had a space heater in the chair in front of me blowing right at me. It worked like a charm! Then, onto the dreaded PFTs. I didn't realize the PFTs were dreaded until I saw the results. I last went to the doctor on June 1 - before the travels and the Series of Unfortunate Events. My numbers have dropped pretty significantly in that short time. These are hospitalization-worthy, hands-down, but we'll see if the information is relayed along to my doctor. I don't feel bad enough to warrant going into the hospital, but I do know these are pretty much the worst numbers I've ever seen. Laaaaaaaaame.
Yesterday I had lunch with my friend (ED), her mom, and her brother. It was fun to catch up and eat MEXICAN FOOD! We got kicked out of the restaurant because we're cool like that. And they were also closing for the afternoon.
I operated the camera at the theatre last night. The show was sold out and a lot o' fun.
Off to tackle the Chattahoochee!
Friday, July 16, 2010
You're beautiful
Sing that title like James Blunt sings it, please.
Well, it's late, but I haven't even been home for an hour. Tonight's show was fun. Like I mentioned, it was a private event for a consulting firm. Ironically, when I ran out at the beginning of the show, one of the first people I saw was a person I had a lengthy meeting with the other day at work. He is a member of the alumni board. That was actually extremely shocking, and I could tell he was just as surprised. In the show, I played Conducted Orchestra, Buzzer, Repeat-Scene-That Kind of Family, and Emotion Interview (with a physical characteristic thrown in the mix). I had a lot of fun in every single scene, which felt really great!
Today was a very hectic day work-wise. Yes, I worked from home, but it felt almost busier than if I'd been in the office. When I walked out the door for the show, it hit me that I hadn't even eaten a real meal all day. I'm not saying that like I'm proud, but I'm just surprised that today was that crazy. For the first time ever, I even forgot two of my three study drug doses. I'm not proud of that, either. I did end up using my lunch hour to go to the grocery store today, and I successfully bought a cart of groceries for the first time in at least three months. Pathetic, I know.
I can't remember if I mentioned this or not because my mind is so ... gone, but I have my endocrinologist and study appointments tomorrow. Then I'm heading to meet my friend (ED) for a late lunch. I am pretty excited for the day! It's a little busy for a day off of work, but it will be nice. I work at the theatre tomorrow night, too. Saturday means floating down the Chattahoochee with some really fun people. I soooo look forward to this day!
Well, my voice is halfway gone, which is a great foreshadowing for tomorrow's appointments. I am interested to see where my PFTs sit; the hospital is typical for me in August...
I am feeling a lot of positive energy lately. Heck yes!
One last thing - I had a crazy dream this morning. Sorry to all you cat people. I was walking to my front door and there was a cat staring me down. The cat was gray and pretty fluffy. I noticed as I neared the door that his tail was unattached, sitting next to him. When I got close, he jumped up and tried to bite my hand. I was trying to violently shake him off because it hurt so bad. I ended up hurling him off and the funniest thing is that this happened in real life. I literally woke myself up chucking a pillow across the room. I know that probably doesn't sound as funny as it was, but I could totally see that being a YouTube sensation if it had been recorded.
Well, it's late, but I haven't even been home for an hour. Tonight's show was fun. Like I mentioned, it was a private event for a consulting firm. Ironically, when I ran out at the beginning of the show, one of the first people I saw was a person I had a lengthy meeting with the other day at work. He is a member of the alumni board. That was actually extremely shocking, and I could tell he was just as surprised. In the show, I played Conducted Orchestra, Buzzer, Repeat-Scene-That Kind of Family, and Emotion Interview (with a physical characteristic thrown in the mix). I had a lot of fun in every single scene, which felt really great!
Today was a very hectic day work-wise. Yes, I worked from home, but it felt almost busier than if I'd been in the office. When I walked out the door for the show, it hit me that I hadn't even eaten a real meal all day. I'm not saying that like I'm proud, but I'm just surprised that today was that crazy. For the first time ever, I even forgot two of my three study drug doses. I'm not proud of that, either. I did end up using my lunch hour to go to the grocery store today, and I successfully bought a cart of groceries for the first time in at least three months. Pathetic, I know.
I can't remember if I mentioned this or not because my mind is so ... gone, but I have my endocrinologist and study appointments tomorrow. Then I'm heading to meet my friend (ED) for a late lunch. I am pretty excited for the day! It's a little busy for a day off of work, but it will be nice. I work at the theatre tomorrow night, too. Saturday means floating down the Chattahoochee with some really fun people. I soooo look forward to this day!
Well, my voice is halfway gone, which is a great foreshadowing for tomorrow's appointments. I am interested to see where my PFTs sit; the hospital is typical for me in August...
I am feeling a lot of positive energy lately. Heck yes!
One last thing - I had a crazy dream this morning. Sorry to all you cat people. I was walking to my front door and there was a cat staring me down. The cat was gray and pretty fluffy. I noticed as I neared the door that his tail was unattached, sitting next to him. When I got close, he jumped up and tried to bite my hand. I was trying to violently shake him off because it hurt so bad. I ended up hurling him off and the funniest thing is that this happened in real life. I literally woke myself up chucking a pillow across the room. I know that probably doesn't sound as funny as it was, but I could totally see that being a YouTube sensation if it had been recorded.
Wednesday, July 14, 2010
HUSTLAH
I'm a hustlah, y'all.
So, this morning I forgot to mention that I got up before dawn and worked out. Yeah, you heard it here. I ran on the treadmill and then hopped on the elliptical. I think that should be my order from now on because running on the treadmill really gets me going and then I can coast on the elliptical. It seemed more worthwhile, and I'm gauging that completely on the fact that I started sweating sooner and maintained it throughout the entire workout. Hot, I know. That's what I do.
The meeting at the hospital was pretty cool. It was neat to learn some of the inner workings, but it was also nice to give an objective, firsthand opinion. I feel like this is going to be a great experience. We're already en route to implementing an idea that I suggested today.
My boss is on vacation starting tomorrow through July 26. This means I am the boss of all communications at work. I am making that sound much more important than it is.
I accomplished a first today(ish). In a 24-hour period, I had Starbucks three times. So, last night I only had a hot chocolate because I was drinking it so late and didn't want to be up all night. Today I went to Starbucks at lunch to clear my head (bad mood) and got my White Chocolate Mocha latte and some fruit. They stamped that come-back-after-whatever-time-and-get-a-$2-grande-iced-drink thing on my receipt, and I was sold. I ended up going there for a little while between work and rehearsal, and enjoyed an iced Mocha latte. In both Starbucks sessions, I worked on some creative endeavors, so that was fun!
Rehearsal tonight was fun. We talked about/worked on a game I've never played and rarely seen - Jam Session. It's a musical game and we all know that singing is my expertise. Right, farmer? JERK. After the casting was announced for this week's show (the private event), there was a slight change in plans because the show was supposed to be mainstage. I was already calculating how I would efficiently utilize my time on Thursday night, but found out tonight that I'm going to be in the show anyway. So, although the groceries will have to wait, it will be fun. My mom will officially miss her first show tomorrow, but I know she'll be there in spirit! She would be there if it was allowed.
I have some exciting book-related things to do before I go to sleep! I realize it's already after midnight, but this is the kind of energy I had after I took that writing course at Emory. I'm all riled up! It should be okay if I stay up kind of late because I'm telecommuting tomorrow, so I can knock off the two hours it takes me to get ready and sit in traffic.
So, this morning I forgot to mention that I got up before dawn and worked out. Yeah, you heard it here. I ran on the treadmill and then hopped on the elliptical. I think that should be my order from now on because running on the treadmill really gets me going and then I can coast on the elliptical. It seemed more worthwhile, and I'm gauging that completely on the fact that I started sweating sooner and maintained it throughout the entire workout. Hot, I know. That's what I do.
The meeting at the hospital was pretty cool. It was neat to learn some of the inner workings, but it was also nice to give an objective, firsthand opinion. I feel like this is going to be a great experience. We're already en route to implementing an idea that I suggested today.
My boss is on vacation starting tomorrow through July 26. This means I am the boss of all communications at work. I am making that sound much more important than it is.
I accomplished a first today(ish). In a 24-hour period, I had Starbucks three times. So, last night I only had a hot chocolate because I was drinking it so late and didn't want to be up all night. Today I went to Starbucks at lunch to clear my head (bad mood) and got my White Chocolate Mocha latte and some fruit. They stamped that come-back-after-whatever-time-and-get-a-$2-grande-iced-drink thing on my receipt, and I was sold. I ended up going there for a little while between work and rehearsal, and enjoyed an iced Mocha latte. In both Starbucks sessions, I worked on some creative endeavors, so that was fun!
Rehearsal tonight was fun. We talked about/worked on a game I've never played and rarely seen - Jam Session. It's a musical game and we all know that singing is my expertise. Right, farmer? JERK. After the casting was announced for this week's show (the private event), there was a slight change in plans because the show was supposed to be mainstage. I was already calculating how I would efficiently utilize my time on Thursday night, but found out tonight that I'm going to be in the show anyway. So, although the groceries will have to wait, it will be fun. My mom will officially miss her first show tomorrow, but I know she'll be there in spirit! She would be there if it was allowed.
I have some exciting book-related things to do before I go to sleep! I realize it's already after midnight, but this is the kind of energy I had after I took that writing course at Emory. I'm all riled up! It should be okay if I stay up kind of late because I'm telecommuting tomorrow, so I can knock off the two hours it takes me to get ready and sit in traffic.
Please advise
Hi!
This is going to be super-brief, but I'm about to walk out the door to my first meeting at Emory University Hospital as a Patient Family Advisor. I had my little intro meeting and what not, but this will be the first glimpse into the role that I've accepted. I'm kind of excited because I know I'll see some nurses that take care of me when I'm in the hospital. NURSES ROCK!
Umm, yesterday I met a friend (MV) at Starbucks and had a good time talking life. She really made me think a lot about some things, and it also kind of helped me devise a plan. I really don't mean to sound vague; it's just too long of a story to tell in here. Ultimately, though, I left there feeling pretty energized.
I came home and released some creativity, which felt wonderful. Memo to the world: I'm about to get crackalackin' on my book thanks to the encouragement of the people in my life. That book is too close to done to let dwindle. That was entirely too many to/toos in that sentence. Tutus.
TODAY IS AN AWESOME DAY, KIDS!
This is going to be super-brief, but I'm about to walk out the door to my first meeting at Emory University Hospital as a Patient Family Advisor. I had my little intro meeting and what not, but this will be the first glimpse into the role that I've accepted. I'm kind of excited because I know I'll see some nurses that take care of me when I'm in the hospital. NURSES ROCK!
Umm, yesterday I met a friend (MV) at Starbucks and had a good time talking life. She really made me think a lot about some things, and it also kind of helped me devise a plan. I really don't mean to sound vague; it's just too long of a story to tell in here. Ultimately, though, I left there feeling pretty energized.
I came home and released some creativity, which felt wonderful. Memo to the world: I'm about to get crackalackin' on my book thanks to the encouragement of the people in my life. That book is too close to done to let dwindle. That was entirely too many to/toos in that sentence. Tutus.
TODAY IS AN AWESOME DAY, KIDS!
Tuesday, April 13, 2010
Dodging a bullet
Well, y'aaaaaaaaalllllllllll........ My doctor's appointment went surprisingly well today! I'll start at the beginning. I got to Emory right at 10:00 a.m. to start my glucose tolerance test. When they finally drew (DREW!) my blood at about 10:30 a.m., I felt like I was going to faint. I survived the blood draws and then drank the special orange drink, which actually tastes pretty decent when you're starved beyond rational thinking. I then headed over for my DEXA bone density scan. After that, I headed back to the lab and had to wait until 12:30 p.m. for my post-orange DRANK stick. The worker was so helpful and, given how weak I was feeling she packed me a baggie with two 4-packs of Oreos and two apple juices, which I thought was really sweet. I want to write her boss and commend her work, but every time I plan to do that it's difficult to follow through...
From there, I headed up to the real doozie - the CF appointment. I didn't have to wait too exceptionally long before completing my PFTs. Believe it or not, my numbers had IMPROVED from the study visit, but were still down a little bit from my baseline. I couldn't believe that I would have improved considering the fact that I didn't feel so great, but I did...so I'll take it! My bloodwork from the morning looked great, with my glucose tolerance test showing that I was normal.
Interestingly, though, the doctor did notice that a particular liver enzyme was elevated. It didn't worry her too much, but she did take note of it since some CFers end up with liver disease for a variety of reasons. Then, we got to talking about the pain that I'd had (the ER-inspiring pain), and she was convinced that the pain was in my gall bladder/liver area. She said that lungs don't really have pain censors, with the exception of when the lining is inflamed, but my pain didn't seem to be affected by my breathing. So, with the combination of the pain and the elevated enzymes, she wants to do an ultrasound of my gall bladder/liver if the pain returns. Hopefully it was just an odd occurrence, and I'm optimistic since I've been painkiller- and pain-free for a week.
Needless to say, after all of that news, I don't have to go to the hospital and I don't have to return for a follow-up until June 1. YAAAAAY! The doctor also mentioned trying to get me back in the study, so I'm hopeful for that. I let that fall to the back-burner temporarily because obviously my current health is the most pressing, but lately I'd been thinking how I really hope to get to participate in the study even though my initial screening indicated otherwise. I'll keep you posted on that.
I don't really have too much to say, as the doctor's appointment was the bulk of my day. Drew's Crew is at $9,367. I'm excited! I think my next endeavor is to encourage friends to email everyone they know. We've come a long way, but we're still only halfway to my aspirational goal!
Thank you to everyone who sent well wishes my way; they helped!
From there, I headed up to the real doozie - the CF appointment. I didn't have to wait too exceptionally long before completing my PFTs. Believe it or not, my numbers had IMPROVED from the study visit, but were still down a little bit from my baseline. I couldn't believe that I would have improved considering the fact that I didn't feel so great, but I did...so I'll take it! My bloodwork from the morning looked great, with my glucose tolerance test showing that I was normal.
Interestingly, though, the doctor did notice that a particular liver enzyme was elevated. It didn't worry her too much, but she did take note of it since some CFers end up with liver disease for a variety of reasons. Then, we got to talking about the pain that I'd had (the ER-inspiring pain), and she was convinced that the pain was in my gall bladder/liver area. She said that lungs don't really have pain censors, with the exception of when the lining is inflamed, but my pain didn't seem to be affected by my breathing. So, with the combination of the pain and the elevated enzymes, she wants to do an ultrasound of my gall bladder/liver if the pain returns. Hopefully it was just an odd occurrence, and I'm optimistic since I've been painkiller- and pain-free for a week.
Needless to say, after all of that news, I don't have to go to the hospital and I don't have to return for a follow-up until June 1. YAAAAAY! The doctor also mentioned trying to get me back in the study, so I'm hopeful for that. I let that fall to the back-burner temporarily because obviously my current health is the most pressing, but lately I'd been thinking how I really hope to get to participate in the study even though my initial screening indicated otherwise. I'll keep you posted on that.
I don't really have too much to say, as the doctor's appointment was the bulk of my day. Drew's Crew is at $9,367. I'm excited! I think my next endeavor is to encourage friends to email everyone they know. We've come a long way, but we're still only halfway to my aspirational goal!
Thank you to everyone who sent well wishes my way; they helped!
Tuesday, March 30, 2010
FIGHT
Well, I ended up staying home from work today because the sleeping thing didn't work out too well last night. I was also short-of-breath, so I thought it would be best to work from home today. I was feeling decent the first few hours after waking, but my health started to gradually decline over the afternoon, and now I'm feeling probably the worst I've felt all day. I just took my second dose of the antibiotic, though, so I think it's too early to make a judgment on whether or not that's working.
One of the doctors checked in today and would like me to get admitted Friday if I'm not feeling any better. I am confident that I'll start feeling better, but I must say that my body has surprised me a bit over these last few days. Usually I feel kind of in control even when I'm out of control, but not so much in recent days. I am scheduled to be in the improv show on Thursday, so my goal is to at least hang in there for that. I know it sounds like a lot of work, but surprisingly I tend to check my health problems at the door when I walk in there. Sooo, I'm not concerned.
Today I made my squares for this CF quilt that is being auctioned off. They look kinda decent, but they also look a little child-like. The fabric markers I got this weekend were bleeding a bit on the fabric, but I think they turned out okay. I had one for Love, Peace, Beauty and Smile. I know those words don't necessarily go together, but I had to keep it to basics when I realized how the markers were working out on the fabric. Oh well... it's for charity. The paper said I could write the person's name and age and I almost put something like 'Mary, 4' to save a little face, but whatever! I don't imagine any of the other participants having much luck with the type of material we had.
I got a few donations today, so those made me smile. I think I'll have some luck in the coming days since it's almost a new month... The best thing that could come out of being hospitalized is more awareness. That'd be the light at the end of that tunnel. I really, really think I can shake this without IVs. I might try walking on the treadmill tomorrow if it seems at all feasible.
Mmm, I am looking forward to a much better day tomorrow. I think I just realized I haven't even laughed today, which is so not like me. There's a chance I laughed during a quick phone call earlier, but I remember wondering if I sounded as out-of-breath as I felt. Oh, Drewdle. Get it together.
Send any extra positive energy my way. NO! HOSPITAL! FOR! DREW!
One of the doctors checked in today and would like me to get admitted Friday if I'm not feeling any better. I am confident that I'll start feeling better, but I must say that my body has surprised me a bit over these last few days. Usually I feel kind of in control even when I'm out of control, but not so much in recent days. I am scheduled to be in the improv show on Thursday, so my goal is to at least hang in there for that. I know it sounds like a lot of work, but surprisingly I tend to check my health problems at the door when I walk in there. Sooo, I'm not concerned.
Today I made my squares for this CF quilt that is being auctioned off. They look kinda decent, but they also look a little child-like. The fabric markers I got this weekend were bleeding a bit on the fabric, but I think they turned out okay. I had one for Love, Peace, Beauty and Smile. I know those words don't necessarily go together, but I had to keep it to basics when I realized how the markers were working out on the fabric. Oh well... it's for charity. The paper said I could write the person's name and age and I almost put something like 'Mary, 4' to save a little face, but whatever! I don't imagine any of the other participants having much luck with the type of material we had.
I got a few donations today, so those made me smile. I think I'll have some luck in the coming days since it's almost a new month... The best thing that could come out of being hospitalized is more awareness. That'd be the light at the end of that tunnel. I really, really think I can shake this without IVs. I might try walking on the treadmill tomorrow if it seems at all feasible.
Mmm, I am looking forward to a much better day tomorrow. I think I just realized I haven't even laughed today, which is so not like me. There's a chance I laughed during a quick phone call earlier, but I remember wondering if I sounded as out-of-breath as I felt. Oh, Drewdle. Get it together.
Send any extra positive energy my way. NO! HOSPITAL! FOR! DREW!
Monday, March 29, 2010
Trial and error
Well, today was a big ol' waste of time.
As you know, I emailed the doctor in the middle of the night to try to get some sort of answer for the unusual pain I was having in my chest/lungs. Well, I got a return phone call right as I walked into an 11:00 a.m. appointment at work, so I made a quick exit. The nurse recommended that I go to the ER because the pain in my lungs was concerning and the doctor didn't have clinic hours until Thursday. Sooooooo, one of my coworkers and I headed over to the ER. Mind you, I hate the ER, so I hope that illustrates the desperation I was facing.
Upon arriving, we had to wait practically forever to check in, even though I marked chest pain and shortness-of-breath as symptoms (two of the top things to acknowledge according to the signs all over the walls). When they finally took me back to check out my vitals, my blood pressure was by far the highest it's ever been - 154/96. That's absolutely unheard of for me, but they didn't seem too concerned.
After a while, they opted to do some bloodwork and a chest x-ray. The bloodwork came back showing elevated white blood cell counts, and the chest x-ray came back looking really good. Soooo, thinking the x-ray would be the tell-tale sign of what was causing the lung pain, we were left with really no indications. However, we got one of my doctors on the phone who highly encouraged that I be admitted to the hospital, but I wasn't quite buying the argument since there aren't any symptoms that are typical of when I have a lung infection that requires IV antibiotics.
So, after spending six hours in different holding areas of the ER, I walked out with a prescription for a different, higher-dose oral antibiotic, as well as prescription pain medicine. I promptly went to Target and got my prescriptions filled and enjoyed a medicine cocktail for dinner. I'm not even sure what to think of today's colossal waste of time, but I guess it's relieving to know that they didn't see pneumonia or a collapsed lung or anything. I was honestly terrified after the way last night went.
Well, I am just ready to try to sleep. I haven't yet decided what I'll do workwise tomorrow, but I guess it will depend on if I feel well-rested after tonight. I'm happy to report that nothing seems to be overly concerning...just the usual shenanigans.
Thanks to everyone who was looking out for me today. :o) If I didn't get back to you, that's where I was - between the guy with the sliced-open hand and the perforated-bowel dude.
As you know, I emailed the doctor in the middle of the night to try to get some sort of answer for the unusual pain I was having in my chest/lungs. Well, I got a return phone call right as I walked into an 11:00 a.m. appointment at work, so I made a quick exit. The nurse recommended that I go to the ER because the pain in my lungs was concerning and the doctor didn't have clinic hours until Thursday. Sooooooo, one of my coworkers and I headed over to the ER. Mind you, I hate the ER, so I hope that illustrates the desperation I was facing.
Upon arriving, we had to wait practically forever to check in, even though I marked chest pain and shortness-of-breath as symptoms (two of the top things to acknowledge according to the signs all over the walls). When they finally took me back to check out my vitals, my blood pressure was by far the highest it's ever been - 154/96. That's absolutely unheard of for me, but they didn't seem too concerned.
After a while, they opted to do some bloodwork and a chest x-ray. The bloodwork came back showing elevated white blood cell counts, and the chest x-ray came back looking really good. Soooo, thinking the x-ray would be the tell-tale sign of what was causing the lung pain, we were left with really no indications. However, we got one of my doctors on the phone who highly encouraged that I be admitted to the hospital, but I wasn't quite buying the argument since there aren't any symptoms that are typical of when I have a lung infection that requires IV antibiotics.
So, after spending six hours in different holding areas of the ER, I walked out with a prescription for a different, higher-dose oral antibiotic, as well as prescription pain medicine. I promptly went to Target and got my prescriptions filled and enjoyed a medicine cocktail for dinner. I'm not even sure what to think of today's colossal waste of time, but I guess it's relieving to know that they didn't see pneumonia or a collapsed lung or anything. I was honestly terrified after the way last night went.
Well, I am just ready to try to sleep. I haven't yet decided what I'll do workwise tomorrow, but I guess it will depend on if I feel well-rested after tonight. I'm happy to report that nothing seems to be overly concerning...just the usual shenanigans.
Thanks to everyone who was looking out for me today. :o) If I didn't get back to you, that's where I was - between the guy with the sliced-open hand and the perforated-bowel dude.
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