Laaaaaaaaaaaabor Day

I am getting so bad at blogging. I cut myself some slack, though, because it feels like I haven't been home much at all this week.

Well, Thursday was an eventful day. Because of all of the kidney issues, the doctor mentioned wanting to hospitalize me to give me fluids to help flush out my kidneys. They went ahead and moved next Tuesday's CF appointment up to Thursday so that they could put me in the hospital with as much information as possible. So, I went to get bloodwork so they'd have the results by the time of my appointment. Now, for the dramatic turn in all of this - my kidney bloodwork was almost back to normal and my PFTs were up another three percent. Nobody understands at this point, but the hospital talk was merely a scare and now it's only a matter of scheduling sinus surgery. This has been such an emotional roller coaster!!!!!!!!!!

Thursday night I spoke at a CF fundraising cultivation event. It was fun! Since I was running around all day, I really had zero preparation time, but I still think it went well. Yeehaw!

Yesterday (Friday) was a good day. My roommate was working from home, too, so it was a lot of fun. I wish she got to work from home with me every Friday. :-) When I got off work early, I went to meet Claire at the pool. We hung out and chatted for a few hours. On my way to work at the theatre, I treated myself to Yogli Mogli and ate many things shunned by my low-oxalate diet.

I worked the lights without any supervision last night, so that was fun. Light-wise, all went extremely well. However, the lights person is also in charge of recording the DVD, and I got the dreaded "Disc cannot be finalized" message. Thankfully everyone was really laid back, but it made me so mad. That was the easiest part of the last three shows. People were like, "Oh lord. I know that message." So, OOPS, although I heard I couldn't have done anything to fix it.

Right now I'm sitting at my parents' kitchen table. I'm about to go get my hair did(!).

Happy birthday to my brother (yesterday), and happy Labor Day to all!

A success story

Hmm, well, going to sleep is long overdue, but I figured I ought to write in here since it crossed my mind. I got home from the CF event I spoke at not too long ago. The event was in a very nice home in the Lenox Mall area. It took me forever to get there because I forgot about the roads that are still washed out due to the flood. The good news, however, is that I got there.

I winged it, for the most part, but I think it went well. It was a small and intimate gathering, so it wasn't as intimidating as it could have been. I met some very nice people all there to support my cause, so that's always uplifting!

I also found out some news I deem super-exciting. I was speaking with a CF doctor about clinical trials and one just got approved this week. Less than 10 percent of the CF population could benefit from this drug, and I happen to be in that small group. I have been following this drug for almost three years now, so I am way excited that my treatment center will have access to it. It could seriously make a huge difference in my life. Guess who's looking into that tomorrow!

Well, I ended up working from home today. I've had a headache since Monday and just wasn't feeling up to driving to work today. I also had a very difficult time sleeping last night, so that wasn't helping matters. The headache hasn't bothered me all evening, so let's hope this is indicative of what tomorrow will bring!

Tomorrow I am doing camera/suggestions at the theatre. It's funny that not being there in two days seems so weird to me. I think that means I'm officially in deep. I also don't have to be there for any reason this weekend, so that will feel unusual, too.

Anyway, I can hardly keep my eyes open, so I think I'll call it a night. I don't know the last time I was up this late on a weeknight. I know I didn't say a whole lot worth hearing, but whatever. I'm excited about that drug. YEAH BABY!