Hmm, well, going to sleep is long overdue, but I figured I ought to write in here since it crossed my mind. I got home from the CF event I spoke at not too long ago. The event was in a very nice home in the Lenox Mall area. It took me forever to get there because I forgot about the roads that are still washed out due to the flood. The good news, however, is that I got there.
I winged it, for the most part, but I think it went well. It was a small and intimate gathering, so it wasn't as intimidating as it could have been. I met some very nice people all there to support my cause, so that's always uplifting!
I also found out some news I deem super-exciting. I was speaking with a CF doctor about clinical trials and one just got approved this week. Less than 10 percent of the CF population could benefit from this drug, and I happen to be in that small group. I have been following this drug for almost three years now, so I am way excited that my treatment center will have access to it. It could seriously make a huge difference in my life. Guess who's looking into that tomorrow!
Well, I ended up working from home today. I've had a headache since Monday and just wasn't feeling up to driving to work today. I also had a very difficult time sleeping last night, so that wasn't helping matters. The headache hasn't bothered me all evening, so let's hope this is indicative of what tomorrow will bring!
Tomorrow I am doing camera/suggestions at the theatre. It's funny that not being there in two days seems so weird to me. I think that means I'm officially in deep. I also don't have to be there for any reason this weekend, so that will feel unusual, too.
Anyway, I can hardly keep my eyes open, so I think I'll call it a night. I don't know the last time I was up this late on a weeknight. I know I didn't say a whole lot worth hearing, but whatever. I'm excited about that drug. YEAH BABY!
Showing posts with label drugs. Show all posts
Showing posts with label drugs. Show all posts
Wednesday, January 27, 2010
A success story
Labels:
camera,
CF event,
clinical trials,
drugs,
flooding,
headache,
Lenox Mall,
speech,
suggestions,
theatre
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